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Posts Tagged ‘Nephrotic Syndrome’


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Thursday, October 8th, 2009

A Note from the Founder

Founder, Deidra Hall

Deidra Hall, Founder

Welcome!

Thank you for stopping to read our blog. It is a privileged and an honor to have you here.

I became part of the elite “kidney patient club” at the age of 12, diagnosed with Nephrotic Syndrome. Although I’ve been through some ups and downs since then, I count it as a blessing. A blessing? Why of course! If I would have never entered this world of chronic kidney disease, I would have never met some of the most inspiring people I know. For example, doctors dedicating their lives to research and treatment for kidney disease, parents who stay up late nights and have learned what a “cc” is, coordinator of walk-a-thons to raise money to find cures, and – patients, patients who despite long hours on dialysis, “moon” faces, and careful diet planning – learn to laugh and live and take what strength they have to live productive lives. Coming in contact with these people have truly made me who I am.  Out of this  “disease” came this awesome opportunity in KCF, and I would like to share this opportunity with you!

So I ask, please stop by often – we’ll try to update at least once a week. We’ll share news, events, and also stories of our journeys (so if you have something you’d like to share, please do! We’d love to post them for you!)

Until then,

Deidra

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Written by: Deidra Hall

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